For a youngster with Spinal Muscular Atrophy, a motor-neuron disease, Annie Jones "wants her independence, she's confident and she wants to do everything," says Mom, Diane.

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Annie Jones is 6, and admits she’s kind of a daredevil.

“When I shut my eyes on the swing it feels like flying.

“It feels like fun.”

The middle sister between Claire, 10, and Lilly, 4, she loves the playground. And for a youngster with Spinal Muscular Atrophy, a motor-neuron disease, she “wants her independence, she’s confident and she wants to do everything,” says Mom, Diane.

That’s not easy for a kid with two battery-powered wheelchairs — “a slow one and a fast one.” She loves to steer by herself — no help, thank you — up the ramp into the family van.

But when Annie leaves her chair, Claire or Diane has to help.

So, Annie has learned how to use her charm, humor and persistence.

She’s learned something else:

“I’m spoiled.”